Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

The year I turned 40, I celebrated for a week with my dearest friends and family and tried to feel grateful. The life expectancy of a person with cystic fibrosis was just 10 years at the time I was ...

As someone with cystic fibrosis, I am used to being diagnosed with a variety of health conditions. Most of the time, these diagnoses come after I have a physical characteristic I need assessed and I ...

I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...

I’m going to preface this article by saying I’m probably not the best person in the world to give anyone relationship advice. However, I do feel like a lot of other people out there — whether you have ...

The Cystic Fibrosis Foundation is providing additional funding to Arcturus Therapeutics to develop an inhaled messenger RNA therapy for CF that provides lung cells with the correct instructions to ...

Melissa Jones: Sometimes you don't even realize you had your “person” all along. I would say this was the case with my twin sister and me. We lovingly refer to each other as “twinnies.” Being a ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

Some carry their struggles privately. I admire the fact that people can be quiet in their struggle. But I do not “suffer silently.” I am someone who will tell their story and tell it loudly.