Healio

'It can be really bad': Vascular Ehlers-Danlos syndrome treatment options remain limited

Please provide your email address to receive an email when new articles are posted on . Ehlers-Danlos syndrome can be a devastating disease in patients who are severely affected — a situation made ...
Nasdaq

Aytu BioPharma Receives Orphan Drug Designation from FDA for AR101 for Treatment of Vascular Ehlers-Danlos Syndrome

ENGLEWOOD, CO / ACCESSWIRE / December 8, 2021 / Aytu BioPharma, Inc. (NASDAQ:AYTU), a specialty pharmaceutical company focused on commercializing novel therapeutics and consumer healthcare products, ...
Nasdaq

Aytu BioPharma Announces Initiation of the AR101 PREVEnt Trial for the Treatment of Vascular Ehlers-Danlos Syndrome

ENGLEWOOD, CO / ACCESSWIRE / July 20, 2022 / Aytu BioPharma, Inc. (NASDAQ:AYTU), a pharmaceutical company focused on developing and commercializing novel therapeutics, today announced the initiation ...
Baylor College of Medicine

Evenings with Genetics - Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome, commonly known as EDS, is a group of genetic disorders that impacts the connective tissue and often results in joint hypermobility, hyperextensible or fragile skin and/or blood ...
Tampa Free Press on MSN

Beyond the joints: The hidden mental health crisis facing EDS patients

While Ehlers-Danlos Syndrome (EDS) is clinically defined by its physical manifestations—hyper-mobility, fragile connective ...
PopSugar

What to Know About Ehlers-Danlos Syndrome, According to MDs

This informational guide, part of PS's Condition Center, lays out the realities of this health concern: what it is, what it can look like, and strategies that medical experts say are proven to help.
Baylor College of Medicine

Heritable Disorders of Connective Tissue Research

With the support of the Pamela and David Ott Fund and the John M. O'Quinn Foundation, The Pamela and David Ott Center of Excellence in Heritable Disorders of Connective Tissue and Ehlers-Danlos ...
CNN

Lena Dunham says she has Ehlers-Danlos syndrome. Here’s what it is

Responding to a paparazzi photo that captured her walking with her cane, Lena Dunham explained she has Ehlers-Danlos syndrome – a group of disorders affecting the joints and skin. “An Ehler-Danlos ...
blogTO

Ontario refuses to help woman with rare disorder that leaves skull detached from spine

A Toronto woman has spent the bulk of her adult life suffering from a debilitating disorder, and Ontario's health care system ...
Psychology Today

Ehler's Danlos Syndrome and Psychiatric Symptoms

The Ehlers-Danlos Syndromes (EDS) refer to a collection of genetic disorders which weaken and undermine the normal structure and function of collagen, a protein produced by the body that is an ...
People

Jameela Jamil Reveals She Has Rare Syndrome That Causes Loose Skin and Extremely Flexible Joints

The Good Place star confirmed that she has Ehlers-Danlos syndrome after a fan asked Julie Mazziotta is the Senior Sports Editor at PEOPLE, covering everything from the NFL to tennis to Simone Biles ...